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Monday, April 26, 2010

Ready for Summer Fun!


So my baby is just adorable... don't have to tell me twice! :)

Scars on Upper Left Leg

Now that the weather is warmer and I am putting Kyla in t-shirts and pants, I have discovered several scars on her upper left leg that I know without a doubt are scars where Amniotic Bands were attached but did not wrap around. When Kyla was born I noticed the largest scar on her leg in the hospital, but no others. I remember thinking it was really weird and I was so drugged up that the thought crossed my mind wondering if the doctor had cut her when I had my c-section, but of course that wasn't the case since it was all healed up. It is hard to see the scars in this photo, but when I press on the largest scar it is deep and very easy to feel. They all look like someone took a sharp razor blade and just pressed down in a straight line. There are also scars higher up on her thigh, but they are very small. I am not sure in total how many there are, but I know these are from bands because they are on the left side, the same side where her arm was amputated by a band and I have not found anything on the right side of her body... I am so grateful that nothing ever happened to her leg. I cannot imagine how hard that would be if she would've lost her leg as well. The idea of ABS is that it doesn't affect just one area of the body, but several.

So originally people had asked me if I was going to talk to my first OB doctor about Kyla's situation and I have always said no and haven't seen the point...but seeing all these scars makes me think, how many bands were inside of the amniotic sac??...There must have been several so why didn't they see that in the ultrasound? I seriously have been thinking about contacting my first OB doctor's office and requesting my first OB ultrasound notes (18 weeks gestation) be sent to me so I can see if it says anything on there about the bands and arm amputation. I wouldn't be surprised at all if they did, and if there were notes on there and I just wasn't told about it. If that is the case, then I might be somewhat tempted to file a complaint against the doctor. Just so he can no longer practice OB and retire like he probably should. I don't know, I know I should not be angry or anything, but seriously if a doctor doesn't review test results like he should then why should he be allowed to practice?

Thursday, April 8, 2010

Another Cute Photo of Kyla


Eating her rice cereal. She likes to get messy, but in this photo she is actually very clean!

Meet & Greet with Orthotics Doctor


Tomorrow we meet with an orthotics doctor here in the Tri-Cities to see if we want to go with them to make Kyla's prosthetic arm. There are 3 orthotics places here in the Tri-Cities, however I am going to make sure that whoever we go through knows what they are doing, or else we will just continue to make trips up to Seattle and will work with Seattle Children's Hospital. The lady we are meeting with tomorrow has been doing pediatric prosthetics for ~ 20 years, so it sounds like she knows what she is doing. (Let's hope). I attached a current photo of Kyla. She is getting so chunky and cute! The really neat thing is that she is using her little arm a lot when she is in the bathtub and her toys float at arm level, making it easier for her to utilize her arm. I'm still searching for a part time job so that when we do have Kyla's prosthetic arm here and she is wearing it, I will have the time I need to work with her each day. Crossing my fingers on this one, that something at the right level will come up since I'm almost topped out in my job category.... So we'll see!